These kids above are some of our Filipino beneficiaries from Batangas Talahib Pandayan National High School and they are personally saying thank you to our Featured Volunteer of the month Lucas Kramer. So who the heck is Lucas and what makes him so special?
I actually know Lucas's parents from way back, but I only just met Lucas at the Alternative Gift Fair in Takoma Park a few years ago. He was there to make a donation to Bikes for the World and several other organizations. We actually see him every year when he donates part of his allowance to help kids in the Philippines get bikes and tubes. And well we think that's pretty darn cool. And so did they. And they wanted to share their gratitude.
Last year Bikes for the World had to sit the Alternative Gift Fair out to give other non-profits a chance so we didn't see Lucas there. But lucky us, he needed a few volunteer hours for school and he turned up in our warehouse just last month! Not only was this kid smashing open his piggy bank to support us, but he also wanted to put a little muscle into it.
When his mom challenged him to consider donating some of his allowance during his volunteer visit he didn't hesitate to open up his charity jar and dump out the contents, entirely! "As a parent, what I love is how proud he was to bring you that envelope of money. He's beginning to connect the dots of giving wealth AND time to causes he believes in," reported Karla.
And that he did. The whole family rolled up their sleeves and grabbed wrenches to help us prep some bikes to ship overseas. And we told the kids in the Philippines about that too and again they were like, WOW! that guy's younger than us and he's in there helping us get bikes?! They made a video and sent that our way to share with Lucas.
Dave said, "that left the kid speechless, introspective and then super-motivated to volunteer again!" And after Lucas saw the video he was all smiles, "I feel like such a good person right now."
The cool thing about our volunteer opportunities is that they are great for families. It's a fun activity that gives back and truly makes a difference around the world. For the Kramers it was a good team effort that allowed Lucas to fully participate despite some physical limitations. Like many kids that come through our warehouse he struggled with the occasional rusty pedal which his mom was able to help torque off in a pinch.
Lucas is your typical pre-teen boy. He loves playing video games and building things with Legos. His favorite classes in school are art, lunch and PE. He's crazy about dogs. He loves to eat, Thai, 100%. He likes the beach, loves to swim, and enjoys riding motorcycle with his dad.
But Lucas never learned how to ride a bike, it's a small regret his mom shared with us. He likes being out on the bike with them but they worried about the hills and torque necessary to pedal a bike through an obstacle. You see unlike other kids who come through our warehouse Lucas truly does have a bigger challenge on those rusty parts that require a little more muscle than others; Lucas has Duchenne muscular dystrophy.
Because September is Duchenne Awareness Month we wanted to bring you Lucas's whole story. In our warehouse we will be showing our muscle in support of Lucas and we are asking you to do the same. September 7th is World Duchenne Awareness Day and we are asking you to support Lucas by becoming more aware of his disease.
Duchenne muscular dystrophy affects 1 in every 3,500 live male births which accumulates to about 20,000 new cases each year world wide. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. In layman's terms, because dystrophin is absent, muscle cells are easily damaged. This slowly happens which can lead to medical problems that eventually affect the heart and lungs. Although Duchenne can be passed from parent to child, approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. There is no cure for Duchenne.
What does this mean for Lucas? We ask you to watch the video below to learn more about this disease. Basically, due to the lack of production of a specific protein called dystrophin, he does not build normal muscle. Weight bearing physical activities and going up & down stairs causes scar tissue to build up in his muscles, most notable in his thick calves. He can do permanent irreversible damage by doing anything that is weight bearing.
Back to that original question of this post...who the heck is Lucas and what makes him so special? Well, as I stated earlier I am biased, so you can judge that for yourself. But if you've ever seen his electric smile, been on the opposing end of his quick wit, or exchanged commentary on whether dinner was spicy enough...I suspect you already know the answer to that question!